pfapa journal: 28 days since the last fever

17 May 2012

28 days since the last fever

I've been afraid to write it down officially because I don't want to jinx it, but the boy has been fever free for a month now. I assume it is the cimetidine doing its mysterious work. We're still not sure if it will lengthen the time between fevers, lessen the symptoms, or both, but for the moment every extra day between fevers is a wonderful thing.

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our story

In March 2012, after about six months of fevers, each separated by about three weeks, our then six-year-old son was diagnosed with possible periodic fever, aphthous stomatitis, pharyngitis, and adenitis syndrome, known by the acronym PFAPA.

There are many sources of information on the internet about the syndrome, but not many that detail different families' experience with it. I thought it would be helpful to write about our experience to give others an idea of what one might expect with a PFAPA diagnosis, though not every experience is the same.

17 May 2012

28 days since the last fever

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